I first noticed what looked like a plugged pore around October, and resisted the urge to pick at it. it was small, like a blackhead but slightly off center to what looked like a small smooth bump underneath it. Weird. In February, it flared up, pussed and red and looking like a zit ready to explode. That should be the end of that, I figured. Blackhead becomes zit, then goes away. But it didn't--it returned to about the same state as before, and I was ready to figure out what the heck this thing was.
(picture: very benign looking opening to a cyst or pilomatricoma in February)
Our pediatrician guessed it was a sebaceous cyst, harmless but removable by a dermatologist if we didn't want to wait for it to dissipate on its own. I waited a few more months to make the dermatologist appointment, then was suprised to hear him say almost immediately that it was a pilomatricoma, or benign hair follicle tumor. What's more, it would continue to grow, calcify and require surgical excision either now or later, but definitely sometime.
(picture: very not-so benign looking cyst or pilomatricoma in May)
The pilomatricoma is about an inch below her eye. Given the location on the face and proximity to her eyes, I called the pediatric plastic surgeon at University of Michigan Mott Children's Hospital, although the dermatologist was comfortable doing it himself. In the interim of our wait between dermatologist consult (May 3) and plastic surgeon consult (June 3) the thing has gotten huge--nearly dime-size and angry red. The skin has been stretched by its inflammation such that it appears to be flaking off over the top of the bump, and it generally looks like a nasty nasty bug bite (if it was on an adult, it could look like cystic acne, but one doesn't assume this on a three year old). This inflammation has lasted nearly three weeks, much longer than the February flare up. The June 3 plastic surgery consult, with Dr. Steven Kasten, can't come soon enough.
I feel your pain. My daughter has had numerous pilomatricomas, she had had them since the age of 2yrs she is now 12yrs. I feel helpless and have done much research on it with no answers how to prevent them. Good luck to you and your daughter.
ReplyDeleteThank you for sharing your story. My daughter is 10 months and just had this tumor removed at CHOP (Children's Hospital of Philadelphia). A plastic surgeon did her surgery and she is on the road to recovery. God Bless you and yours.
ReplyDeleteI live in Ann Arbor and want to know your thoughts on Dr. Kasten. We were told surgery from a doctor at Kellogg Eye Clinic, but I wanted a second opinion. My daughter is 9 (and completely terrified) my husband and I just want to make sure we're going to the right kind of doctor. Any information will help. Thank you for this blog....my daughters eye looks like the early stages of your daughters...Rebecca Gzym
ReplyDeletemy thoughts on dr kasten...I found his work to be the most perfect and incredible stitches closure I’ve ever seen (not that I’ve seen many but you know what stitches usually look like...stitches.) I was so afraid of a Frankenstein scar on her face. Instead my daughters closure was so perfect I couldn’t even see it when she came into recovery. I actually thought something hAd gone wrong and they didn’t do the surgery!!! Crazy. Would highly highly recommend his work. We’re at 7 years later and her face is perfect w no scar visible and it never came back. Everything will be great, show you daughter my daughters face and tell her it’s really no big deal! Plus Mott is so good to the kids it’s almost fun in there (almost!) good luck!
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